The International Porphyria Network Ipnet

Ipnet aims to promote fundamental and clinical research in the field of porphyrias, improve knowledge of the porphyrias and facilitate best practice in their treatment and diagnosis by accommodating and interconnecting expert activities across the world in the service of porphyria patients.

More information about Ipnet can be found on Ipnet.org​

The Norwegian Porphyria Centre (Napos) runs two Ipnet projects:

• Ipnet External Quality Assessment Scheme (Ipnet EQAS)​

• European Porphyria Registry (EPR)​