Patient-Reported Outcomes in CARDiology


Despite decreases in mortality rates and improved treatment methods, 450,000 Norwegians live with chronic cardiovascular conditions that not only affect their daily life but also have implications for clinicians, healthcare systems and society at large. Patient-reported outcomes, together with clinical outcome measures, form the foundation for shared decision-making and are of special importance in cardiovascular clinical practice.

Patients’ experiences are important for the PROCARD research group. Therefore, our studies combine patient-reported outcomes (PROs) and clinical outcome measures to promote patient-centred care and treatment. The PROCARD research group encourages patients to collaborate in decision-making concerning their own health. This is in line with political strategies related to user involvement in healthcare services.

The Patient-Reported Outcomes in Cardiology (PROCARD) research group was established in 2009 by Professor Tone M. Norekvål. The focus of this research group is related to the following main areas:

1. Quality of life, self-reported physical and psychological health, health literacy, frailty, sleep, and delirium
2. Adherence to lifestyle and treatment advice
3. Satisfaction with the use of, and shared decision-making between healthcare services
4. Healthcare personnel’s adherence to local and international guidelines


PROCARD investigates how patients experience continuity of care in primary and secondary healthcare services, and reasons for non-adherence to treatment advice. Many patients diagnosed with cardiovascular diseases (CVDs) are unable to reduce known risk factors for CVD, and many find themselves unable to reach treatment goals regarding physical activity, smoking cessation, blood pressure, or cholesterol levels.

PROCARD uses qualitative and quantitative methods, data from national health registries, and data from large national and international cohort studies to investigate how patients experience acute and critical illness, and how they live with CVD. Further, PROCARD performs systematic reviews and validates instruments for the collection of PROs. This forms the foundation for intervention studies that could later be used in patient treatment.

PROCARD strives to improve resource utilization and shared decision-making, as well as to reduce potential gaps between research and clinical practice. Our proximity to the clinical field ensures that our research is based on relevant clinical research questions.


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      Last updated 8/28/2023